В Санта-Барбаре пройдет благотворительная акция Team Hope Walk для поддержки больных хореой Гентингтона

Организация Huntington's Disease Society of America проведет в субботу, 12 сентября, массовую пешую акцию в Санта-Барбаре, где участники соберут средства на исследования и помощь семьям пациентов. Это крупнейшее национальное мероприятие фонда, которое ежегодно проходит в более чем 100 городах США для борьбы с неизлечимым генетическим заболеванием.

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The Pacific West Region of the Huntington’s Disease Society of America will host the 2026 HDSA Team Hope Walk Santa Barbara, Saturday, Sept. 12 at Ledbetter Park, 801 Shoreline Drive. Registration starts at 9 a.m. and the event starts at 9:30 a.m. All proceeds support HDSA’s mission to improve the lives of people affected by Huntington’s disease (HD) and their families. Team Hope is HDSA’s largest national grassroots fundraising event, which takes place in more than 100 cities across the U.S. and has raised more than $28 million for HD since its inception in 2007. Thousands of families, friends, co-workers, neighbors, and communities walk together each year to support HDSA’s mission to improve the lives of people affected by HD and their families, event organizers said. Online registration and donation information can be found here. Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, there are some 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s simultaneously. The Huntington’s Disease Society of America is dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA provides help for today and hope for tomorrow for people with HD and their families. HDSA was founded in 1967 by Marjorie Guthrie, the wife of legendary folk singer Woody Guthrie, who died from HD complications when he was only 55 years old. The Guthrie family legacy lives on at HDSA. To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 800-345-HDSA.